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Hong Kong Mucopolysaccharidoses & Rare Genetic Diseases Mutual Aid Group


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Our Story

This is a story of a little bean, and a story of a little group of people.

Summer has come.  Beans fall on to the soil in the garden, waiting to grow up.  Just like everyone else, Beanie works hard everyday.  He eats.  He sunbathes.  He exercises.  And he dreams of growing up, as every other bean does.  

But he doesn’t grow much taller….



…“No growing, life’s ending” is the doctors’ prophecy to him.

This is usually the beginning of the story for Mucopolysaccharidoses (MPS) patients.  Like other rare genetic diseases, this disease is hard to diagnose prior to pregnancy, and medical treatment is extremely costly.  Many patients and parents are exhausted.  Is this a joke on their genes?  Is this a test of resolution imposed by destiny?

They have small bodies, but their dreams are big, and they never give up moving forward.

Foot Print

Please choose from the menu on your left to learn more about MPS, and how you can help.




25 July to 15 August 2018
We are organising a "Rare Image" exhibition from 25 July to 15 August 2018 at H6 CONET at The Center
Click here for details.

2 April 2018
Mural Painting at Mong Kok Police Station
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24 February 2018
For Rare Disease Day 2018, we will host a documentary screening and sharing session at the Science Park.
Click here for details.

Latest Videos

Short film "得之我幸"
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Behind the scenes of "Rare Portraits: Inside Out"
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Short film created by students of Hong Kong Shue Yan University
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Seeing Great Love
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Seeing Great Love Again
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Transmitted Love In Rare
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Please support us

Your donation will help with implementation of self-help and mutual aid efforts among our patients. - Details