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Hong Kong Mucopolysaccharidoses & Rare Genetic Diseases Mutual Aid Group
繁簡Eng. 

 

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Our Story

This is a story of a little bean, and a story of a little group of people.

Summer has come.  Beans fall on to the soil in the garden, waiting to grow up.  Just like everyone else, Beanie works hard everyday.  He eats.  He sunbathes.  He exercises.  And he dreams of growing up, as every other bean does.  

But he doesn’t grow much taller….

Beanies

 

…“No growing, life’s ending” is the doctors’ prophecy to him.

This is usually the beginning of the story for Mucopolysaccharidoses (MPS) patients.  Like other rare genetic diseases, this disease is hard to diagnose prior to pregnancy, and medical treatment is extremely costly.  Many patients and parents are exhausted.  Is this a joke on their genes?  Is this a test of resolution imposed by destiny?

They have small bodies, but their dreams are big, and they never give up moving forward.

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Please choose from the menu on your left to learn more about MPS, and how you can help.

 

 

News

28 February 2016
Come and join the exhibition and awards presentation ceremony for "Invent for Love" Secondary School Students Invention Contest
Click here for details.

28 February 2016
"World Through My Eyes" Exhibition
A joint exhibition by patient groups from Hong Kong, Singapore, Malaysia, the Philippines, India and Vietnam. An event of Rare Disease Day 2016.
Click here for details.

Latest Videos

Seeing Great Love
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Seeing Great Love Again
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Transmitted Love In Rare
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SUPPORT US

Please support us

Your donation will help with implementation of self-help and mutual aid efforts among our patients. - Details

 

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