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Related links

Overseas Organizations for MPS


Organization Name



Mucopolysaccharide & Related Diseases Society Australia Ltd. (Australian MPS Society)


The Canadian Society for Mucopolysaccharide and Related Diseases Inc.

United Kingdom

Society for Mucopolysaccharide Diseases

United States of America

National MPS Society


Taiwan MPS Society

Overseas Organizations for Rare Genetic Diseases


Organization Name


United Kingdom

Global Organisation for Lysosomal Diseases

United States of America

National Organization for Rare Diseases


Taiwan Foundation for Rare Diseases


Fabry Support Group Australia Inc.

For detailed listing of all organizations, please click here to see full list.

Other Resources

For information about the different types of MPS and other rare genetic diseases, please click here.

What Is Orphan Drug?

What Is Orphan Disease?

China Genetics Enquiry Net (Available in Chinese only)

China Genetics Enquiry Net – about MPS  (Available in Chinese only)

Website on MPS I

Website on therapy for MPS I (BioMarin Pharmaceuticals & Genzyme)

Website on MPS II (Shire)

Website on therapy for MPS II (Shire)

Website on MPS VI (BioMarin Pharmaceuticals) (Simplified Chinese version)

Website on therapy for MPS VI (BioMarin Pharmaceuticals)

Website on Pompe Disease (Genzyme)

Buddies Scheme

Nian Duo Tang

We hope you are able to find valuable information using the links above. We offer these links for more resources about MPS and other rare genetic diseases. Inclusion in this list does not constitute any real or implied endorsement of their content.


Updated: March 14, 2010

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