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香港黏多醣症暨罕有遺傳病互助小組
繁簡Eng. 

 

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Related links

Overseas Organizations for MPS

Country/Region

Organization Name

Website

Australia

Mucopolysaccharide & Related Diseases Society Australia Ltd. (Australian MPS Society)

http://www.mpssociety.org.au

Canada

The Canadian Society for Mucopolysaccharide and Related Diseases Inc.

http://www.mpssociety.ca

United Kingdom

Society for Mucopolysaccharide Diseases

http://www.mpssociety.co.uk

United States of America

National MPS Society

http://www.mpssociety.org

Taiwan

Taiwan MPS Society

http://www.mpssociety.org.tw

Overseas Organizations for Rare Genetic Diseases

Country/Region

Organization Name

Website

United Kingdom

Global Organisation for Lysosomal Diseases

http://www.goldinfo.org

United States of America

National Organization for Rare Diseases

http://www.rarediseases.org

Taiwan

Taiwan Foundation for Rare Diseases

http://www.tfrd.org.tw/

Australia

Fabry Support Group Australia Inc.

http://www.fabry.com.au

For detailed listing of all organizations, please click here to see full list.

Other Resources

For information about the different types of MPS and other rare genetic diseases, please click here.

What Is Orphan Drug?
http://en.wikipedia.org/wiki/Orphan_drug

What Is Orphan Disease?
http://en.wikipedia.org/wiki/Orphan_disease

China Genetics Enquiry Net 
http://www.gcnet.org.cn (Available in Chinese only)

China Genetics Enquiry Net – about MPS
http://www.gcnet.org.cn/essays/MPS.html  (Available in Chinese only)

Website on MPS I
www.MPSIdisease.com

Website on therapy for MPS I (BioMarin Pharmaceuticals & Genzyme)
www.aldurazyme.com

Website on MPS II (Shire)
http://www.hunterpatients.com

Website on therapy for MPS II (Shire)
http://www.elaprase.com

Website on MPS VI (BioMarin Pharmaceuticals)
http://www.maroteaux-lamy.com

http://www.maroteaux-lamy.com/Chinese/Patient/AboutMPS.aspx (Simplified Chinese version)

Website on therapy for MPS VI (BioMarin Pharmaceuticals)
http://www.naglazyme.com

Website on Pompe Disease (Genzyme)
http://www.pompe.com

Buddies Scheme
../buddies/

Nian Duo Tang
http://www.nianduotang.com

We hope you are able to find valuable information using the links above. We offer these links for more resources about MPS and other rare genetic diseases. Inclusion in this list does not constitute any real or implied endorsement of their content.

 

Updated: March 14, 2010

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