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A number of our publications are now available as e-books for free download!
香港黏多醣症暨罕有遺傳病互助小組
繁簡Eng. 

 

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MPS Publications

Over the years, we have published five books to document our patients’ and their families’ extraordinary stories as they grapple with the life MPS and rare genetic diseases have given them. The books have provided hope, relief, and support to the patients and their families, educated the public about MPS and rare genetic diseases, and helped HKMPS create public awareness.

In order to share our stories with more people, we have converted the books into e-books, adding English and, for some, Simplified Chinese versions, for free download. If our stories have inspired you, please make a donation.

Format Description

  • PDF Suitable for desktop and tablet computers Suitable for eBook readers and tablet computers
  • With this format the book's original layouts are preserved, you may read the book using applications such as Adobe Reader or Apple Preview. This format is suitable for larger screens.
  • ePub Suitable for eBook readers and tablet computers Suitable for desktop and tablet computers Suitable for smartphones
  • Suitable for all major eBook readers and mobile eBook apps (Such as Apple iBooks and Google Play Books)
  • Suitable for Amazon Kindle Suitable for eBook readers and tablet computers Suitable for smartphones Suitable for desktop and tablet computers
  • Suitable for Amazon Kindle's eBook reader and its smartphone and computer apps.

 
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Title: Rare Love
(罕有人情)
Category: Comics
Description: A compilation of comics and illustrations created by 15 university and secondary school students telling the stories of MPS patients and their families. These exquisite works captured the patients' perseverance and fortitude, their hope for the future, their commitment to giving back to society, their hope for treatment, and the love between the patients and their families and supporters.
Published: February 2013 (1st edition)
Publisher: Bbluesky Co. Ltd
Language: English
(Other versions: Traditional Chinese, Simplified Chinese)
Pages: 144
Price (Printed Version): HK$78
Table of
Contents
 
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Title: Rare Journey
(罕有道路)
Category: Prose
Description: Ten rare disease patients share their lives and dreams in Rare Journey, and stories of "comrades" that fought along them. All patients share one aspiration: to graduate, work, care for their parents, and give back to society. Mrs Selina Tsang, wife of ex-Chief Executive of Hong Kong, and Dr Chau wrote the introductions for the book.
Published: July 2011 (1st edition)
Publisher: Bbluesky Co. Ltd
Language: English
(Other versions: Traditional Chinese, Simplified Chinese)
Pages: 108
Price (Printed Version): HK$68
Table of
Contents
 
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Title: Rare Parents
(罕有父母)
Category: Prose
Description: The book tells touching, personal stories of 12 parents in Hong Kong, whose children were born with rare genetic diseases --- these are stories of shouldering pain, suffering, despair for the little ones, accepting and overcoming difficulties with courage, and immense love for their children and themselves.
Published: May 2010 (1st edition)
Publisher: Bbluesky Co. Ltd
Language: English
(Other versions: Traditional Chinese, Simplified Chinese)
Pages: 128
Price (Printed Version): HK$68
Table of
Contents
 
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Title: Little Giants・Great Letters
(醣豆豆・情書書)
Category: Story Book
Description: Little giants --- 12 people with the genetic disease, Mucupolysaccharides (MPS); the big buddies --- 7 local designers. The 12 little giants and the 7 big buddies come together through letters and interviews for an interactive creative art project, “Little Giants X the Big Ds”, where the designers created exhibits based on the little giants’ ideas and dreams. Their ideas and artworks were presented at a May 2008 public exhibition. This book is a collection of their creative works, the ideas behind it, and selected letters between the little giants and their big buddies. Enclosed are 2 letters from the little giants to you as well.
Published: July 2008 (1st edition)
Publisher: Bbluesky Co. Ltd
Language: English
(Other version: Traditional Chinese)
Pages: 56
Price (Printed Version): HK$65
Table of
Contents
 
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Title: MPS Factsheet
Category: Factsheet
Description: A small six-fold stand-up leaflet introducing the disease Mucopolysaccharidoses, the treatment for them, and our organisation.
Published: 2009
Publisher: Bbluesky Co. Ltd
Language: English
(Other versions: Traditional Chinese, Simplified Chinese)
Pages: 12
Price: Free
 
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Title: Little Giants-Dreams of Braving MPS
(醣豆豆 大夢想)
Category: Story Book
Description: "Just like everyone else, Beanies work hard everyday. Eating, sunbathing, and exercising, and dreaming of growing up. But they don’t grow much taller…" Their bodies were small, but they had big dreams, that is, to keep moving forward. The stories in this book unveil the dreams and challenges faced by eight families in real life.
Published: September 2006 (1st edition)
Publisher: Bbluesky Co. Ltd
Language: English
(Other versions: Traditional Chinese, Simplified Chinese)
Pages: 80
Price (Printed Version): HK$58
Table of
Contents

 

 

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